Rare Disease Awareness Month 2026
The Reps for Rare Dance Challenge is BACK!!
The Reps For Rare Dance Challenge was created in 2024 by Founder Helen Lill as a super fun way to raise global awareness of Epidermolytic Ichthyosis (EI). Every person who follows the dance routine contributes 150 reps towards the 300,000 total, chosen to represent the rare prevalence of EI which affects 1 in 300,000 people born worldwide.
It’s so easy to get involved, and there’s even an instructional video to help you, you only need a screen and volume control to get you started. Do it yourself at home, invite a group of friends to join you, or do it as a warm-up for your school PE classes. We’ve had office workers do the challenge in their lunch hour, whole school assemblies, karate clubs, garden parties, you name it, there’s no end to the list of people who can be convinced to dance together for a good cause.