Epidermolytic Ichthyosis Global Symposium 2026 - 19th March - Open Registration

The EI Cure Project and EI Cure Project Research Alliance are pleased to announce a 2-day Symposium dedicated entirely to Epidermolytic Ichthyosis will be held at the Zurich Careum, Switzerland on 19-20th March 2026.

On March 19th, we are pleased to invite interested individuals and up and coming researchers to register to attend a full day of presentations including the following themes:

• Patient and Parent Experiences,

• Clinical Classifications and Care,

• Pathogenesis, Proteomics, and Drug-Repurposing,

• Gene-Editing Research Project Updates.

The Registration Fee of CHF 175 includes the full day of presentations on March 19th and the opportunity to discuss Epidermolytic Ichthyosis with patient organisations, patient advocates, scientists, and clinical experts from across the world, in addition to lunch and refreshments throughout the day.

On March 20th, we will gather a Steering Committee of experts to help shape the future of Clinical Care and Research. Please note that attendance on this day is by invitation only, and is not included in the Registration Fee.

You can view or download the preliminary full program of events here, but please be aware that some minor changes may occur between now and the time of the event.

There is a huge amount to be excited about for this rare skin disease, so please register today and join us to find out more.

Please Note: If you are a pharmaceutical or other industry representative interested in sponsoring this symposium, please contact: helenlill.eicureproject@gmail.com.